I just created a Facebook group for all the EDSers with TNXB mutations. I would be happy if someone wanted to join:
https://www.facebook.com/groups/TNXBandEDS/
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
- Startseite
- For Beginners
- Why the zebra butterfly logo?
- What is a cervical instability?
- What is the Ehlers-Danlos syndrome?
- The first steps
- How can I find additional information?
- How do I cope with being sick?
- Chronic illness and friendship / family / partnership
- Misdiagnoses
- Why chronically ill people are extraordinary strong
- Master your appointment – Be the professional patient
- Examples of my „lists“
- Traveling with EDS and comorbidities
- For physicians
- Why participate in clinical studies?
- Anatomy
- Ehlers-Danlos Syndrome
- EDS hypermobile type
- EDS hypermobile type diagnostic
- Tenascin X B Gene
- TPSAB1 Gene
- EDS comorbidities
- Helpful aids for EDS
- EDS and surgeries
- For physical therapists
- EDS hypermobile type
- Causes and Symptoms
- Diagnostics
- Therapy
- non-invasive
- invasive
- Possible consequences of cervical spine instabilities
- Publications
- EDS Publications
- Marfan Publications
- Loeys Dietz Syndrome Publications
- Rheumatoid arthritis publications
- Down Syndrome Publications
- Whiplash Injury publications
- Barre Lieou syndrome publications
- Tinnitus Publications
- Vertebral artery insufficiency publications
- Cervical myelopathy / spinal cord damage publications
- Fibromyalgia and spinal cord damage publications
- Diagnostics Publications
- Non-invasive therapy publications
- Invasive Therapy Publications
- Contact
- Imprint & Privacy Statement
- My Awareness Projects
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