Welcome everyone to our first Q&A hosted by the bilingual EDS & CCI Website instabile-halswirbelsaeule.de. As our first expert we are happy to announce Dr. Markus-Frederik Bohn who contributes to EDS research in the field of Tenascin X, a now more common factor and potential cause in many EDS patients.
Dr. Bohn published many scientific articles and currently works at University of California San Francisco (UCSF). He is happy to answers question in either German or English language.
Some of his publications:
After the Q&A we will create a blog post for the above mentioned website with your favorite questions and answers that will then be publicly available to read.
Starting at 9 am PST you can begin to ask questions around the topic genetics of connective tissue disorders in the question section of this post or in my Facebook Event (https://www.facebook.com/events/1273688382642154).
To ask questions here you do not need to add an email address or name. You can also ask anonymously. But if you do enter your email address you will receive a notification if your question is answered. Only your Username will be shown. If you do not add one it will show “anonymous”
Our expert will then answer the questions as soon as possible.
We would be very happy about an active participation and hope this is only the first of a series of Q&A’s on this page.
PS: There is no question that is too stupid to ask. Don’t worry, just ask 😉
Date: July 10 2016
Start Time 09 am PST
End Time: 3 pm PST
This event exclusively serves the purpose of exchanging information and cannot be seen as medical advice. Neither the organizer (Karina Sturm) nor the expert (Dr. Bohn) are medical doctors and therefore no comment during the event can be seen as medical advice!
If you have medical questions about your condition please ask your doctor about it.
Furthermore, the organizer has no control over the questions asked by others during the event. These represent the opinion of the commentator and not necessarily the opinion of the organizer.
Any comment that violates German laws will be removed by the organizer.
This event is presented by www.instabile-halswirbelsa
Imprint and privacy police as requested by German law:
Please keep in mind: This is a PUBLIC event that is accessible for everyone. This means your posts can be seen by friends, familiy and even strangers. Do not post what you do not feel comfortable to share.