Concerning EDS and CCI:
Start very slow with the patient lying on his back, and without any force on the spine and joints.
No stretching in the beginning (only if the patient already built up core muscles and a basic stability is achieved).
Prefer therapies with low forces on the joints, such as water therapy or pilates (adapted to the personal condition of every patient).
Hear what the patient tells you. Usually there is a wide range of therapies that has already been tried by the patient.
No manipulation of the cervical spine! Many with severe instability do not tolerate manipulation of the cervical spine at all!
Don’t use techniques which only relax muscles. If used than in combination with core muscle strengthening afterwards.
Often asymmetric pressure (for example an exercise which uses only one arm) is less tolerated than symmetry.
Being creative helps to adapt the exercises to our personal limitations. EDS patients mostly suffer from more than one instability which reduces the range of possible therapies a lot.
Use exercises to improve the deep core muscles, balance and proprioception (balance board or mat).
No heavy lifting exercises with machines and weights, work mainly with the patient’s own body weight.
Pay attention to the correct performance of the exercise. People with EDS and/or instabilities tend to use auxiliary muscles (for example holding their breath to improve strength) or hyperextend their joints to have more stability.
Read, research and educate yourself about this condition!
Helpful information concerning physical therapy in EDS patients:
Hypermobility, Fibromyalgia and Chronic Pain
Alan J Hakim (Herausgeber), Rosemary J. Keer (Herausgeber), Rodney Grahame (Herausgeber)
A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) – Hypermobility Syndrome: Working with the Chronic Complex Patient
Isobel Knight (Autor), Rodney Grahame (Vorwort)
Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome (Englisch)
von Brad T Tinkle (Autor)
Living life to the fullest with Ehlers-Danlos Syndrome
EDNF conference 2012 Pilates
EDNF conference 2012 Aquatic Exercise
EDNF conference 2015 Pain
ENDF conference 2015 Physical Therapy
EDNF conference 2015 Physical Therapy II
CSF research Colloquium 2014
Dr. Michael Healy
This is a great lecture about how to treat CCI! It is not only interesting for EDS patients but for all people who suffer from cervical spine instabilities. Also listen how he explains why Upright MRIs are so important.
Unique Manual Physical Therapy Approach To Treat Craniocervical Instability & Chiari
Dr. Michael Healy – Chiari Syringomyelia Foundation