Karina's instabile Halswirbelsäule und Ehlers-Danlos-Syndrom
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
Startseite
For Beginners
Why the zebra butterfly logo?
What is a cervical instability?
What is the Ehlers-Danlos syndrome?
The first steps
How can I find additional information?
Experiences
My story
Stories written by others with cervical spine instability and/or EDS
My Proloexperience
Proloexperiences written by others
My experience with diagnostic tests
Experiences with diagnostic tests written by others
My experience with therapies
My symptoms
My experiences with Ehlers-Danlos Syndrome
My experiences with Dysautonomia
My experience with Mast Cell Activation Syndrome (MCAS)
My experiences with helpful aids for Ehlers-Danlos Syndrome
How do I cope with being sick?
Chronic illness and friendship / family / partnership
Misdiagnoses
Why chronically ill people are extraordinary strong
Master your appointment – Be the professional patient
Examples of my „lists“
Traveling with EDS and comorbidities
For physicians
Why participate in clinical studies?
Anatomy
Ehlers-Danlos Syndrome
EDS hypermobile type
EDS hypermobile type diagnostic
Tenascin X B Gene
TPSAB1 Gene
EDS comorbidities
Dysautonomia and EDS
Postural Orthostatic Tachycardia Syndrome (POTS)
Mast Cell Activation Syndrome (MCAS)
Chiari / Cranio-cervical instability (CCI)
Neuropathy and other neurological problems
Sleep disorders
Cerebrospinal fluid leaks (CSF leaks)
Tarlov cysts
Other comorbidities
Summary of EDS comorbidites as described in the literature
Helpful aids for EDS
EDS and surgeries
For physical therapists
Causes and Symptoms
Marfan Syndrome
Loeys-Dietz Syndrome
Rheumatic diseases
Lyme disease
Down Syndrome
Accidents / Chiropractic
Whiplash injury
Hurler Syndrome
Diagnostics
Team „cervical spine instability“
3D CT Scan in Rotation
X-ray in flexion and extension
Upright MRI
DMX – Digital Motion X ray
Angles which should be measured
Pannus / Retroodontoid pseudotumor
Atypical forms and other findings of the cervical spine
Additional Diagnostic
Otoneurology
Positron emission tomography / PET scan
Neurovegetative Diagnostic
Pharmacogenetic
Sleep study
Duplex A. basilaris/vertebralis
Diffusion Tensor Imaging
Cervical traction
Neck brace
Therapy
non-invasive
General Information
Cervical brace
Isometric Exercises
Med X Training
PNF (proprioceptive neuromuscular facilitation)
Vojta Therapy
Prolotherapy / PRP / Stemcells / BMPs / others
Micronutrients
Hydrotherapy
Pilates
Kinesiotaping
Brunkow therapy
Osteopathy
Pain management
Other types of activity
Walking on different grounds
Tai Chi / Qi Gong
invasive
General – Cervical spine fusion surgeries
Anterior versus posterior surgical procedures
Plate systems
Alanto-axial versus occipito-atlanto-axial fusion techniques
Alternative / new methods
Minimal – invasive fusion
Fusion without instrumentation
Halo – Fixation
Artificial disc replacement
Possible consequences of cervical spine instabilities
In the literature described correlations
Not scientific proven consequences of cervical spine instabilities
Amyotrophic lateral sclerosis / Alzheimer’s / Parkinson’s
Multiple Sclerosis
Fibromyalgia
Other diseases that might be connected to oxidative stress
Other consequences
Publications
EDS Publications
Marfan Publications
Loeys Dietz Syndrome Publications
Rheumatoid arthritis publications
Down Syndrome Publications
Whiplash Injury publications
Barre Lieou syndrome publications
Tinnitus Publications
Vertebral artery insufficiency publications
Cervical myelopathy / spinal cord damage publications
Fibromyalgia and spinal cord damage publications
Diagnostics Publications
Non-invasive therapy publications
Invasive Therapy Publications
Imprint & Privacy Statement
Imprint
Privacy Statement
Deutsch
Upright MRI
Upright MRI Rotation
Upright MRI Extension
Upright MRI Flexion
Static MRI
passive x-ray imaging
passive x-ray imaging in flexion
CCI
CT rotation
CT Flexion
CT rotation
DMX
Ligaments upper cervical spine
Lateral view of neck
Cervical spine instability
3D CT Rendering
3D CT Rendering
3 D CT Rendering
3D CT Surface Rendering
Postcard
EDS Awareness Month 2016
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About Me
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Contact
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My Awareness Projects
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Jetzt.de published my experiences with medical marijuana:
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Article about rare diseases in the German magazine Lea
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“Bekennervideo” about my life with Ehlers-Danlos syndrome (German) in Bento:
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My first English interview with “Invisible Not Broken”
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