Upright MRI of the cervical spine bending sidewards

Upright MRI

Upright-MRI rotational view

Upright MRI Rotation

Upright MRI of the cervical spine in extension

Upright MRI Extension

Upright MRI of the cervical spine in flexion

Upright MRI Flexion

MRI picture of a cervical spine

Static MRI

X-ray of a human cervical spine bent backwards

passive x-ray imaging

X-ray of a human cervical spine bent forward

passive x-ray imaging in flexion

CCI

Two pictures of a young woman. On the left is a comparison between 2010 and 2014 where she is climbing and then wears many braces; on the right is the same woman wearing a neck brace. Text: EDS with CCI / invisible / life threatening / disabling

CT scan of the first two vertebra

CT rotation

CT scan of the cervical spine

CT Flexion

CT scan of the upper cervical spine

CT rotation

Digital motion x-ray revealing subluxation of the inferior facet of C1

DMX

Illustration showing ligaments of the upper cervical spine from posterior view.

Ligaments upper cervical spine

Lateral view of neck with facet joints and spinal nerve roots

Lateral view of neck

Anatomical illustration of a cervical spine with impingement of cervical sympathetic ganglion from cervical instability.

Cervical spine instability

3D CT Rendering of first and second vertebra.

3D CT Rendering

3D CT Rendering of first and second vertebra.

3D CT Rendering

3 D CT Rendering cervical spine

3 D CT Rendering

3D CT Surface Rendering of upper cervical spine

3D CT Surface Rendering

Banner Instabile Halswirbelsäule

Text: The shackles that are my disease force me to keep looking down; every day anew, I break these chains, raise my head and make a step forward

a postcard with two pictures of me. On the left: A woman with short brown hair is holding a hand over her mouth. On her hand are the letters EDS. On the right is a woman with a sign saying #Ehlers-Danlos syndrome

Postcard

Text: EDS affects every organ, skin, blood vessels, joints; every system in our body. EDS is much more than hyper mobility. Pain, Fatigue, Muscle Weakness, Gastrointestinal Problems, Arthritis. Cervical Spine Instability, Tethered Cord, Sleep Disturbances, Bleeding. May is Ehlers-Danlos Syndrome Awareness Month. Osteoporosis, Chiari, Mast Cell Activation, Dysautonomia, Neuropathy. No 2 patients are the same - specialists are rare. Considered rare, but only rarely diagnosed.

EDS Awareness Month 2016

Side shot of a woman with short, brown hair holding a camera with a microphone in front of her face and filming the ocean — […]

Coming soon: A documentary film about the Ehlers-Danlos syndromes

Karina is holding a sign saying: Yes, we care! — […]

A Campaign for you to participate! – Care for Rare

Left: A man with grey and black beard, black hair and a grey shirt who is wearing a hat; right: short, brown hair with a neck brace and sweater with cherries on it. — […]

Tom Beck supports the German Ehlers-Danlos Initiative

Screenshot of the article about my life with EDS — […]

Jetzt.de published my experiences with medical marijuana:

Screenshot of Lea article about my life with Ehlers-Danlos syndrome — […]

Article about rare diseases in the German magazine Lea

Screenshot of Ehlers-Danlos syndrome video in Bento — […]

“Bekennervideo” about my life with Ehlers-Danlos syndrome (German) in Bento: