Coming soon: A documentary film about the Ehlers-Danlos syndromes


The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. This films wants to show the full picture of the condition including the complex presentation of symptoms, to the complications while searching for a diagnosis, over misdiagnoses and their harmful consequences, but also the daily challenges EDS patients face, and the differences in accessibility of care depending on the area they live at. My documentary focuses on the one thing that unites all patients: Their never-ending endurance to overcome those obstacles and to thrive. It conveys the hope and strength with which EDS patients fight for a better quality of life and care. […]

Do you want to learn more about this film?

Then read here.