Karina's instabile Halswirbelsäule und Ehlers-Danlos-Syndrom

Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome

Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome

  • Startseite
  • For Beginners
    • Why the zebra butterfly logo?
    • What is a cervical instability?
    • What is the Ehlers-Danlos syndrome?
    • The first steps
    • How can I find additional information?
    • Experiences
      • My story
      • Stories written by others with cervical spine instability and/or EDS
      • My Proloexperience
      • Proloexperiences written by others
      • My experience with diagnostic tests
      • Experiences with diagnostic tests written by others
      • My experience with therapies
      • My symptoms
      • My experiences with Ehlers-Danlos Syndrome
      • My experiences with Dysautonomia
      • My experience with Mast Cell Activation Syndrome (MCAS)
      • My experiences with helpful aids for Ehlers-Danlos Syndrome
    • How do I cope with being sick?
    • Chronic illness and friendship / family / partnership
    • Misdiagnoses
    • Why chronically ill people are extraordinary strong
    • Master your appointment – Be the professional patient
    • Examples of my „lists“
    • Traveling with EDS and comorbidities
    • For physicians
    • Why participate in clinical studies?
  • Anatomy
  • Ehlers-Danlos Syndrome
    • EDS hypermobile type
      • EDS hypermobile type diagnostic
      • Tenascin X B Gene
      • TPSAB1 Gene
      • EDS comorbidities
        • Dysautonomia and EDS
          • Postural Orthostatic Tachycardia Syndrome (POTS)
        • Mast Cell Activation Syndrome (MCAS)
        • Chiari / Cranio-cervical instability (CCI)
        • Neuropathy and other neurological problems
        • Sleep disorders
        • Cerebrospinal fluid leaks (CSF leaks)
        • Tarlov cysts
        • Other comorbidities
        • Summary of EDS comorbidites as described in the literature
    • Helpful aids for EDS
    • EDS and surgeries
    • For physical therapists
  • Causes and Symptoms
    • Marfan Syndrome
    • Loeys-Dietz Syndrome
    • Rheumatic diseases
    • Lyme disease
    • Down Syndrome
    • Accidents / Chiropractic
      • Whiplash injury
    • Hurler Syndrome
  • Diagnostics
    • Team „cervical spine instability“
    • 3D CT Scan in Rotation
    • X-ray in flexion and extension
    • Upright MRI
    • DMX – Digital Motion X ray
    • Angles which should be measured
    • Pannus / Retroodontoid pseudotumor
    • Atypical forms and other findings of the cervical spine
    • Additional Diagnostic
      • Otoneurology
      • Positron emission tomography / PET scan
      • Neurovegetative Diagnostic
      • Pharmacogenetic
      • Sleep study
      • Duplex A. basilaris/vertebralis
      • Diffusion Tensor Imaging
      • Cervical traction
      • Neck brace
  • Therapy
    • non-invasive
      • General Information
      • Cervical brace
      • Isometric Exercises
      • Med X Training
      • PNF (proprioceptive neuromuscular facilitation)
      • Vojta Therapy
      • Prolotherapy / PRP / Stemcells / BMPs / others
      • Micronutrients
      • Hydrotherapy
      • Pilates
      • Kinesiotaping
      • Brunkow therapy
      • Osteopathy
      • Pain management
      • Other types of activity 
        • Walking on different grounds
        • Tai Chi / Qi Gong
    • invasive
      • General – Cervical spine fusion surgeries
      • Anterior versus posterior surgical procedures
      • Plate systems
      • Alanto-axial versus occipito-atlanto-axial fusion techniques
      • Alternative / new methods 
        • Minimal – invasive fusion
        • Fusion without instrumentation
      • Halo – Fixation
      • Artificial disc replacement
  • Possible consequences of cervical spine instabilities
    • In the literature described correlations
    • Not scientific proven consequences of cervical spine instabilities
      • Amyotrophic lateral sclerosis / Alzheimer’s / Parkinson’s
      • Multiple Sclerosis
      • Fibromyalgia
      • Other diseases that might be connected to oxidative stress
    • Other consequences
  • Publications
    • EDS Publications
    • Marfan Publications
    • Loeys Dietz Syndrome Publications
    • Rheumatoid arthritis publications
    • Down Syndrome Publications
    • Whiplash Injury publications
    • Barre Lieou syndrome publications
    • Tinnitus Publications
    • Vertebral artery insufficiency publications
    • Cervical myelopathy / spinal cord damage publications
    • Fibromyalgia and spinal cord damage publications
    • Diagnostics Publications
    • Non-invasive therapy publications
    • Invasive Therapy Publications
  • Imprint & Privacy Statement
    • Imprint
    • Privacy Statement
  • DeutschDeutsch
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A Campaign for you to participate! – Care for Rare

This entry was posted in Allgemein and tagged Awareness Rare diseases on 23. September 2018 by karinabutterfly

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Welcome to my new website

This entry was posted in Allgemein on 30. November 2014 by karinabutterfly


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