For rare disease day, the German magazine Lea interviewed some rare disease patients for an article, and I was featured as well!
German article about rare diseases in Lea
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
Karina's Cervical Spine Instability and Ehlers-Danlos Syndrome
- Startseite
- For Beginners
- Why the zebra butterfly logo?
- What is a cervical instability?
- What is the Ehlers-Danlos syndrome?
- The first steps
- How can I find additional information?
- Experiences
- My story
- Stories written by others with cervical spine instability and/or EDS
- My Proloexperience
- Proloexperiences written by others
- My experience with diagnostic tests
- Experiences with diagnostic tests written by others
- My experience with therapies
- My symptoms
- My experiences with Ehlers-Danlos Syndrome
- My experiences with Dysautonomia
- My experience with Mast Cell Activation Syndrome (MCAS)
- My experiences with helpful aids for Ehlers-Danlos Syndrome
- How do I cope with being sick?
- Chronic illness and friendship / family / partnership
- Misdiagnoses
- Why chronically ill people are extraordinary strong
- Master your appointment – Be the professional patient
- Examples of my „lists“
- Traveling with EDS and comorbidities
- For physicians
- Why participate in clinical studies?
- Anatomy
- Ehlers-Danlos Syndrome
- EDS hypermobile type
- EDS hypermobile type diagnostic
- Tenascin X B Gene
- TPSAB1 Gene
- EDS comorbidities
- Helpful aids for EDS
- EDS and surgeries
- For physical therapists
- EDS hypermobile type
- Causes and Symptoms
- Diagnostics
- Therapy
- non-invasive
- invasive
- Possible consequences of cervical spine instabilities
- Publications
- EDS Publications
- Marfan Publications
- Loeys Dietz Syndrome Publications
- Rheumatoid arthritis publications
- Down Syndrome Publications
- Whiplash Injury publications
- Barre Lieou syndrome publications
- Tinnitus Publications
- Vertebral artery insufficiency publications
- Cervical myelopathy / spinal cord damage publications
- Fibromyalgia and spinal cord damage publications
- Diagnostics Publications
- Non-invasive therapy publications
- Invasive Therapy Publications
- Imprint & Privacy Statement
Deutsch