What is the Ehlers-Danlos syndrome?


 

Ehlers-Danlos syndrome (EDS) is a group of rare, genetic, hereditary connective tissue disorders.

Connective tissue is basically the glue that holds our body together. This is the reason why EDS is called a multi-systemic disorder: it can cause symptoms everywhere throughout the body.

Ligaments and tendons are built of connective tissue, which is the reason why hypermobility of joints is a general criteria for EDS.

There are several types of EDS, and they have some minor differences. Find an overview here.

The most common type is the hypermobile type. Have a look here.

EDS is a genetic condition, which means by now there is no available cure, but symptoms can be managed.

Since EDS can manifest itself through a variety of symptoms, it is one of the most complex conditions to treat. Symptoms can be mild to life-threatening, and disability can range from non-existing to severe.

Another factor that makes EDS so complex is its comorbidities.

 

 

The best information available are the presentations of the Ehlers Danlos Society’s conferences:

http://ednf.org/2015-annual-conference

Additional scientific publications you can find here.
A huge part of the information available on my website refer to how to diagnose and treat cervical spine instabilities (no matter what the cause is). Cervical spine instabilities are always very complicated and it does get a little harder with EDS as the cause.

My personal way to diagnosis (or better, to the diagnoses) you can find here.

I am always open for any questions or comments, don’t hesitate to send me an email.