What is the Ehlers-Danlos Syndrome?


Ehlers-Danlos Syndrome (EDS) is one possible but rare cause of cervical spine instabilities.

If you are wondering why I am focussing on EDS as cause of cervical spine instabilities you might want to know that after a 4 years journey to diagnose I finally found out the reason for my instabilites – I am suffering from EDS hypermobile type.

EDS is one of several different congenital connective tissue disorders.

Connective tissue is basically the glue which holds our body together. This is the reason why EDS is called a multi systemic disorder, that means it can cause problems everywhere throughout the body.

Ligaments and tendons are build of connective tissue which is the reason why most of the EDS patients have hypermobility of their joints.

There are different types of EDS and they have some small differences. Find an overview here.

The most common type is the hypermobile type. Have a look here.

EDS is a genetic condition which means by now there is no available cure but symptoms can be treated.

Because of the variety of different symptoms EDS is one of the most complex conditions to treat with lots of different manifestations. It can lead from almost no limitations to profound disability.

One major problem in treatment is that EDS can come with many comorbidites which also contribute how severe someone is affected.

One of the best information available are the presentations of the EDNF conferences:

http://ednf.org/2015-annual-conference

Additional scientific publications you can find here.
A huge part of the information available on my website refer to how to diagnose and treat cervical spine instabilities (no matter what the cause is). Cervical spine instabilities are always very complicated and it does get a little harder with EDS as the cause.

My personal way to diagnosis (or better, to the diagnoses) you can find here.

I am always open for any questions or comments, don’t hesitate to send me an email.