My experiences with helpful aids for Ehlers-Danlos Syndrome


To see the category “Helpful aids for EDS” click here.

Cervical collars

I can only say positive things about my cervical collars. Both braces help to improve my symptoms shortly after I put them on.

Unfortunately, I now rely on my collars, even though I tried to strengthen my neck muscles.

More information about collars.

Neck braces

Neck braces – Sporlastic and Aspen Vista Multipost

 

Compression tights / Compression Clothing:

I am wearing my compression tights almost daily. They not only help to improve the dysautonomia symptoms but also stabilize my knees, hips and SI joints. I suffer less pain, am able to walk longer distances, and I am not as tired and worn out as before. I wear compression tights CCL2 by Bauerfeind.

However, my compression leggings had no effect. The compression was minimal to barely noticeable for me.

I also wear a compression long sleeve by Skins which is very comfortable and has a stabilizing effect on my shoulders.

Compression cloths

Compression cloths

 

Ringsplints

I am wearing ringsplints for the DIP joints of both 2nd fingers. The splints prevent hyperextension of the fingers which often happens to me when writing or cutting vegetables. My splints are very comfortable and fit perfectly.

I purchased those ringsplints here :

http://www.amazon.com/gp/product/B017QX5DQY?keywords=love+the+bugs+design+jewelry&qid=1458504491&ref_=sr_1_1&sr=8-1

Ringsplints DIP 2nd finger

Swan neck splints DIP 2nd finger

Ringsplint DIP 2nd finger

Swan neck splint 2nd finger

Ringsplint DIP 2nd Finger

Swan neck splint

 

Proprioceptive shoe inlays

Proprioceptive inlays for my shoes are supposed to improve and stabilize my posture.

Proprioceptive shoe inlays

Proprioceptive shoe inlays

 

Walking cane

My cane helps me to keep balance, supports me when I am walking, and provides some feeling of security.

http://www.fashionablecanes.com/?gclid=CjwKEAjw_ci3BRDSvfjortr–DQSJADU8f2jcT4iuuVxI4i-NpaeWUgCAEeEEkjFn7-NkKR2t-G4IhoCAivw_wcB

Walking cane

Me and my stylish cane

Walking cane

Walking cane

 

Memory foam seat cushion

My memory foam seat cushion is probably one of my best purchases ever. This is a must-have for all people that are suffering from low back pain and SI joint instability with pain in their legs, and, furthermore, it is great for all patients who have pain in their gluteus maximus after sitting for too long. With the help of this pillow I am able to sit on hard undergrounds for way longer than before without getting horrible back pain.

Memory foam seat pillow

Memory foam seat pillow

 

Braces

I own braces for both knees and hips and an additional lower back belt.

Mostly, I am using the lower back belt. Since my hips are unstable as well when walking, I recommend to buy a belt that is flexible and can be worn further below than normal. This little „modification“ squeezes my hips together and helps me to walk with my hips more stable.

I use the following lower back belt:

http://www.bauerfeind.com/b2c/MEDICAL-PRODUCTS/BACK-BRACES-BY-LUMBOTRAIN-AND-SACROLOC/LumboTrain®-Lady/p/YPBF_BAW_LUMBOTR_L

My helpful braces

My helpful braces

 

Dietary supplements

I take a lot of supplements and vitamins, however, I feel no particular improvement in my condition by taking them.

Supplements and medication

Supplements and medication

 

Sleep hygiene

A good sleep is very important, which is why I have tried several little aids, such as pillows. I am noticing the best success when using a memory foam neck pillow in combination with a knee wedge, or alternatively a U-shaped pregnancy pillow. I feel best when there is a pillow between my knees and arms to support my hips and shoulders during night.

Sleeping aids

Sleeping aids

 

Heating pad / Tens

My heating pad and TENS machine I only use when I am in a lot of pain, or if I suffer from severe spasms in my neck or around my SI joints.

Heating pad, Tens

Heating pad, Tens