Helpful aids for EDS


Patients that suffer from conditions such as Ehlers-Danlos syndrome usually need support of their joints, additional to physical therapy.

Often they rely on passive stabilization from the outside to avoid subluxations.

Therefore it makes sense to wear braces if necessary. Again, please be aware that wearing braces might decrease muscle strength, which is why you should still try to exercise your muscles.
In the picture below you can see braces for both knees. the lower back, the hips and inserts for shoes. Those help me to get through the day.

 

Braces for Ehlers-Danlos syndrome

Braces for Ehlers-Danlos syndrome

Furthermore, there are various braces for wrists, shoulders and many more. If braces no longer work for you, orthosis are available.

Ringsplints can help to prevent the finger joints from hyperextending. Every day task, like cooking or writing might be a lot easier when using ring splints.

Ring splint DIP 2nd Finger

Ring splint DIP 2nd Finger

Ring splint DIP 2nd finger

Ring splint DIP 2nd finger

Swan neck ring splint

Swan neck ring splint

Painkillers are usually part of the standard EDS treatment, as well as certain vitamins which might have a positive effect on connective tissue.

 

Pain killers, vitamins and other medication is used to manage EDS

Pain killers, vitamins and other medication is used to manage EDS

A good sleep quality is very important for our bodies to regenerate, but sleep disturbances are very common in EDS patients. Often during the night the position of the joints becomes wrong and they start to hurt. Supportive neck or knee pillows can help to avoid pain and sleep interruption during nighttime. Just try to make your bed as comfortable as you can.

Sleeping aids - supportive neck and knee pillow

Sleeping aids – supportive neck and knee pillow

 

For EDS patients with cervical spine instability it is sometimes helpful to wear neck braces. Especially when symptoms are not bearable anymore.

 

Neck braces

Neck braces

Other items such as heating pads to relieve pain or reduce muscle spasm, or a TENS machine can be helpful.

Heating pad, Tens

Heating pad, Tens

EDS patients with Dysautonomia do benefit from wearing compression stockings, but in my experience compression tights do work better. Additionally, compression tights, shirts or belly binders can help with instability of the lower extremities and/or proprioception.

Compression cloths

Compression cloths

 

Proprioceptive shoe inserts are recommended for people with bad posture and can provide stability.

Proprioceptive shoe inserts

Proprioceptive shoe inserts

For better balance and some feeling of security when walking, aids like a walking stick could be advantageous.

Walking cane

Walking cane

Walking cane

Walking cane

 

 

 

 

 

 

 

 

 

 

A memory foam seat cushion helps with SI instability, lower back pain and nerve compression of the legs.

Memory foam seat pillow

Memory foam seat pillow