EDS patients often suffer from sleep disturbances. For example arousals are described in the literature which do interrupt the deep sleep stages and lead to non restorative sleep. Sleep disturbances prevent our bodies from regenerate. Regenerative sleep is especially important for chronic pain patients with already very low energy levels.
Another cause for sleep disturbances could Dysautnomia be. The reason in this case is the tachycardia which occurs at night. The high heart rate can lead to frequent arousals.
Commonly patients do not even recognize that they have sleep disorders. They think they are actually just sleeping a little bit more but they notice a bad fatigue during day time.
Chronic pain, Depression, Breathing disorders because of Chiari or CCI, septum deviation, and sleep apnea can also cause non restorative sleep.
Through the permanent non restorative sleep daytime fatigue and pain levels will get worse.
It is recommended for some EDS patients to get a sleep study done (Polysomnography).
Sleep disturbances are treated depending on the underlying cause. For example POTS caused sleeping disorders are treated with beta blockers which stabilize the heart rate at night. Is pain the cause, pain medication should be adjusted.
Guilleminault C, Primeau M, Chiu HY, Yuen KM, Leger D, Metlaine A. Sleep-disordered breathing in Ehlers-Danlos syndrome: a genetic model of OSA. CHEST Journal. 2013 Nov 1;144(5):1503-11.